Story
We are embarking on the 3 Peaks Challenge in September to help raise awareness of mitochondrial disease!
At 11am on 24th January 2024, we were told Teddy has a life limiting mitochondrial disease, and an extremely rare defected gene (DNAJC19). This defected gene causes something called dilated cardiomyopathy, which is the degeneration of Teddy's heart.
To the doctors' knowledge, Teddy is only 1 of 55 in the world to carry this, and the only known case in the UK, so we have limited research and unfortunately no cure.
We want to help Teddy and to give hope to all those affected by mitochondrial disease, so we are supporting The Lily Foundation, a charity dedicated to funding vital research to find a cure and support families like Teddy's.
Please give if you can and help us beat Mito!