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London - Monaco

KEEP ME BREATHING

Verified by JustGiving

RCN 1201757
We are building The Breathing Pacemaker to improve the lives of children with CCHS.

Story

Our Journey: Our journey will begin in London, United Kingdom and will culminate in Monaco. During these 12 days, we will traverse various terrains, including the Alps, cycling an average of 120 kilometers each day.

To support our journey, we have set up a dedicated donation page to receive contributions from generous individuals like you who are committed to making a difference. Your contribution will directly benefit "Keep Me Breathing."

Keep Me Breathing are working with Cambridge University with the support of over 130 Doctors, Scientists, Researchers and other medical professionals, building a treatment for children who do not breathe the moment they fall asleep, requiring nurses at their bedside at all times every single night incase they disconnect from artificial life support at some point during the night. Around 20% of these children cannot breathe adequately on their own during the day while awake.

CCHS is a rare disease. There is no cure and no treatment beyond an external connection to artificial life support every single night and sometimes during the day. While a pacemaker exists for hearts, a pacemaker to help you breathe does not.

Keep Me Breathing are building the first ever treatment designed for CCHS. The Breathing Pacemaker. You can read more about Keep Me Breathing's story in the document attached.

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About the charity

KEEP ME BREATHING

Verified by JustGiving

RCN 1201757
Working relentlessly to make breakthroughs in CCHS research. We are building The Breathing Pacemaker. A first of its kind. Please follow our story.

Donation summary

Total
£2,480.00
Online
£2,480.00
Offline
£0.00

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