This May I am participating in Dazzle Walk 2024 to raise money for The Ehlers-Danlos Support UK.

EDS UK provide information, advice and support for people affected by the 13 subtypes of EDS as well as Hypermobile Spectrum Disorder (HSD).

Without their support I would not finally have a diagnosis of hEDS age 34. The average time to diagnosis in the UK is 10 years but many of us wait a lot longer due to the lack of understanding & awareness of the condition.

I realise this isn't the longest walk/limp & that it will be spread over a month but I don't want to let people down by over promising and under delivering!

EDS & it's many comorbid conditions like Raynauds & MCAS mean my health is really unpredictable & I regularly get injured even doing the most simple things (I recently managed to sublux a rib having a hug!). I've lost count of the numbers of times I've dislocated my knees or woken up with subluxed joints.

On top of the 50 miles I hope to cover I will still be doing my daily physio regime as well as undertaking a specialist physical rehab program.

Unfortunately there is no cure for EDS but there's a lot that can be done to help us manage our conditions & get the most out of life.

Please help me raise awareness of this little known condition. We're not rare, just rarely diagnosed.

You can find out more here: https://www.ehlers-danlos.org/