Story
I'm celebrating a very big birthday on August 17th! I do love a big party in my honour generally (!) but this year I'm celebrating it away with Neil, Dan and my folks. I'm also trying to catch up with everyone properly at some point on purpose this year!
If you would have come to a party or bought me a birthday pint, I'm really hoping you can dig out a few ££ to support Action Duchenne. We've got two fantastic boys in our extended family with Duchenne, and that's why I want to raise some ££ and some awareness through a little fundraiser. We live far from them but love the times we get together, but it's a devastating diagnosis and a seriously hard road for them, and their immediate family.
Action Duchenne are a leading charity for research, awareness and support, and jt would mean a LOT to me if you could support them to celebrate my turning 50!! Their standard blurb is below, and if you want to find out more about Duchenne would love you to look at their website. Thank you SO MUCH.
Chalky xx
Action Duchenne has a very clear vision: a world where lives are no longer limited by Duchenne muscular dystrophy.
We have three core objectives:
- Funding research for everyone living with Duchenne
- Cutting-edge science education programmes
- World-class support for Duchenne families
While we hope that research and clinical trials will one day lead to a treatment, or cure, for Duchenne, we believe it is vital to support families living with the condition today. We support families from diagnosis through their whole journey.