In August 2015 at 37 weeks along in our pregnancy, we learned that our son had a heart defect. We delivered Noah at the Children's Hospital of Philadelphia (CHOP) on September 10th, 2015. He was a beautiful, brave baby boy. Noah was diagnosed with idiopathic hypertrophic obstructive cardiomyopathy (HOCM) and fought very hard to stay in our loving family. At 3 weeks old, Noah was gifted a new heart and underwent heart transplant surgery. Unfortunately, the new heart did not function properly, and our sweet baby boy passed away on October 3, 2015. Our family is unbelievably devastated. In efforts to help other families struggling with cardiomyopathy and to honor son, we are partnering with the Children's Cardiomyopathy Foundation (CCF) to organize a virtual walk to raise awareness and funds for pediatric cardiomyopathy.

The Children's Cardiomyopathy Foundation (CCF) is a national nonprofit committed to finding causes and cures for pediatric cardiomyopathy. I support CCF's mission and want to ensure that children with cardiomyopathy are diagnosed earlier, receive expert care, and have a better quality of life. Let's go the distance to make a difference!

Pediatric cardiomyopathy is a poorly understood disease, and your contribution will support initiatives in research, education, disease awareness, and family services.

IT TAKES A TEAM!

For more information on CCF, please visit childrenscardiomyopathy.org or view their social media at @CCFHeartKids.