As many of you are aware, I have EDS (Ehlers-Danlos Syndrome), which is a life-long battle. I have often had to fight for the care and treatment needed because the condition is rare, and an "invisible disability ". My husband, Tony, and I want to raise awareness and funds for the amazing EDS Support UK charity.

MAY is EDS awareness month!!!!!! So we are shouting out about EDS and hoping to raise as much money for EDS Support UK as possible. Every bit of support makes a huge difference.

What are we doing in?

Tony braved an abseil down the Spinnaker Tower in Portsmouth , at the beginning of May, despite his fear of heights!!!!!! An incredible achievement!!!!!

On top of this we are doing additional fundraising events, with all funds being sent directly to this page. I am also speaking out about my personal experiences on social media, to help share awareness. A different themed post from the #myEDSchallenge with a new post every day baring all.

Why EDS Support UK? This charity is not only providing incredible support and education for those affected by EDS, it is also campaigning to stop the current medical negligence of EDS sufferers, fighting for the care and treatment required for EDS patients to be made available. #EnoughIsEnough

Any donation will be greatly received, this cause is so personal and will make a huge difference.

Thank you,

Zoe & Tony xxxx

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.