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CURE DHDDS JOGLE Tandem · 30 August 2024 ·

Cure DHDDS

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RCN 1202643
We raise funds for DHDDS to further research into the gene mutation

Story

Last year we completed the 50km sponsored walk and this year Charlie has really stretched his ambition with a tandem ride from John O'Groats to Lands End. I am joining him on the tandem for a 97 mile leg from Kendal to Haydock

Cure DHDDS was set up by Charlie and Mel Dixon, who in 2022 discovered that two of their three children have an ultra-rare gene mutation, called DHDDS. There are only 70 known people in the world who have this condition. There is little to no funding and there have been very few, if any, studies into the condition. Mel has been at the forefront of bringing together scientists, researchers and other families to try and source as much information as possible, with the hope of giving all those affected by the mutation the best possible chance of finding a cure.

More info can be found here: https://www.curedhdds.org/

Your help and contributions go directly to funding this vital research and I would be very grateful for your support.

Help Jonathan Wright

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Total
£3,510.68
+ £856.25 Gift Aid
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£3,510.68
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£0.00

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