Jonathan Herbert

Jonathan's fundraiser for Motor Neurone Disease Association

Fundraising for Motor Neurone Disease Association
£1,395
raised of £2,000 target
Event: Rob Burrow Leeds Marathon 2025, on 11 May 2025 Start fundraising for this event
The third Rob Burrow Leeds Marathon will take place on Sunday 11 May 2025 and has been inspired by the Burrow family and their extraordinary efforts to raise funds and awareness of MND. Rob Burrow CBE sadly died on 2 June 2024.

Story

In June 2022 my lovely Dad was diagnosed with Motor Neurone Disease at the age of 52. It's been quite the rollercoaster. We've all had to adapt to lots of changes. My Dad now lives downstairs in my parents’ house and is reliant on his wheelchair and a machine for his breathing. His movement is severely restricted and life is tough but he's got his voice and we've still managed to spend lots of quality time together in the years since his diagnosis.

My Dad is amazing, he's set up an Instagram page to show off all the brilliant things he's done with technology to make his life easier: https://url.uk.m.mimecastprotect.com/s/nWesC5Q74C1MYjZizfvSkg0CO?domain=instagram.com

Though he can't move much he can do things like unlock the front door, roll his duvet up and down and raise his bed - all with technology he's adapted. My Mum is also inspirational and has shouldered so much to get us all through this difficult time.

In 2023 I ran the Great North Run for MND with my best friend Rosie and when we got to the end I said how on earth do people run double that and do a marathon. But here we are, it only feels right to be running the Rob Burrow Marathon in May. Please support me if you can in raising money for vital support and research. There is no cure for MND. But there will be in the future.

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About the campaign

The third Rob Burrow Leeds Marathon will take place on Sunday 11 May 2025 and has been inspired by the Burrow family and their extraordinary efforts to raise funds and awareness of MND. Rob Burrow CBE sadly died on 2 June 2024.

About the charity

The MND Association focuses on improving access to care, research and campaigning for those living with or affected by MND in England, Wales and Northern Ireland. If you or a loved one need practical or emotional support, call our Connect Helpline on 0808 802 6262, Mon to Fri between 9am and 4pm.

Donation summary

Total raised
£1,395.00
+ £285.00 Gift Aid
Online donations
£1,395.00
Offline donations
£0.00

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