PSPA is the only UK charity dedicated to improving the lives of people living with Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD). We provide information and support for people affected by PSP & CBD whilst funding research into the causes, treatment, and eventually a cure. Together we can stop PSP & CBD in their tracks.

Progressive Supranuclear Palsy (PSP) is a devastating neurodegenerative disease that gradually robs a person of their mobility, speech, and ability to perform even the simplest tasks. Watching a loved one deteriorate is heartbreaking—once full of life and independence, they become trapped in a body that no longer responds. The rigid muscles, frequent falls, difficulty swallowing, and loss of eye movement make everyday life a struggle, not just for the person suffering but for their entire family. Communication becomes limited, and the emotional toll is immense, as the person you love slowly fades before your eyes. Families often become full-time caregivers, balancing their grief with the exhausting responsibility of providing constant care. PSP doesn’t just take a life; it changes the course of everyone around it, leaving behind a profound sense of loss and helplessness.

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