Hi, Im Alex, I'm 13 years old and with my brothers Jack (8) and Charlie (7) we will be taking part in Every day in May for Dravet! Each day we will each walk or run 5km. Our sister Anna (4) will be tagging along and aiming to cover 2k a day. We will asking friends are family to join us on some of our walks.

Our sister Penney is 3 years old and lives with Dravet syndrome. Seizures, ambulances and hopsital visits are a normal part of our life.

Penney is the happiest little girl who loves to sing, dance and eat crisps. We all love her so much.

Our aim is to raise £500 for Dravet Syndrome UK, to support their vital work in bringing hope to families living with Dravet Syndrome through support, education and medical research. To find out more about their work, visit www.dravet.org.uk.

Please support us by sponsoring us. Thank you