Story
Our story....Anna loved art, dancing, netball, performing with a youth theatre group, youth camps at weekends and during the summer and chilling with friends. Anna collapsed in Oct 2018, almost 13 years old, and has not yet recovered. She has been unable to continue with any education. She will be 18 in October. She is bedbound and spends most of her day in quiet and darkness as one of the many symptoms of M.E. is an intolerance of light and sound. We have to limit our interactions with her as even being in the same room can easily exhaust her and can exacerbate her symptoms. She has to cope with pain all day, everyday. There is little to no support or treatment from NHS. There is a desperate need for more research.
"....doctors do not treat us and science does not study us. How could a disease this common and this devastating have been forgotten by medicine?" Jennifer Brea
ME Research UK believes that only biomedical research can find the causes of ME/CFS, improve diagnosis and treatment, and, ultimately, arrive at a cure. That’s why research is our focus.
We've awarded 57 grants since 2000 and invested over £2.2million. But research is expensive and becoming more so every day. That’s the challenge we face, and that’s why we need your help.