What better way to mark Brain Tumour Awareness Month. We want to share our stories, raise awareness and much needed funds.

On 2nd March 2025 we will be walking 10k from Walton Neuro hospital to the Royal Liver building.

Jessica’s Story

Back in 2018 I was diagnosed with a Pituitary Macro adenoma which is a non cancerous type of brain tumour. My tumour was large and touching my optic nerve which if left could make me blind. It was absolutely terrifying hearing this news with having a brand new baby and not knowing which way was up.

I’ve been under the care of Walton Neuro since 2018 and they are incredible. They advised me to have the tumour removed asap but this would most likely impact on my fertility-and I wanted more kids. They listened and monitored me all through my 2nd pregnancy (which by all accounts was a miracle in the first place).

So back in October 2024 I got the call, it was my surgeon inviting me in for my tumour to be removed. It was terrifying and probably the scariest thing I’ve ever gone through. They operated through my nose and the surgery was a success, a couple of nights in hospital then I was home to recover. I’m feeling good post surgery and awaiting my follow up hoping for the all clear in April.

Su’s Story

My journey began back in September 23. After a night out at the 051 I woke up the next day with horrific tinnitus and a fullness feeling in my left ear. My hearing was also impaired.

After blaming Lee Butler and his loud speakers for 2 weeks, and no change I went the Dr’s. I was told that it should get better over time but after another 2 weeks there was still no change. This time I was sent for further tests.

From there I went to Aintree Hospital, where my hearing was tested. The consultant was a bit baffled but he said to rule out a benign tumour I was sent for an MRI in the December.

Then in Jan 2024 I was diagnosed with a Vestibular Schwannoma (Accoustic Neuroma) now known as Bob!

VS is a benign tumour that grows from the hearing and balance nerve and causes hearing loss, loud tinnitus and dizzy/balance issues as well as other issues.

Because of the size of ‘Bob’ and the fact that it was starting to press on my brain stem, surgery was the most likely course of action, and for which I am currently waiting on the call to go in.

Since diagnosis I have been on a massive roller coaster of emotions but one thing I can say is everyone that I have met along the way have been so kind, supportive and reassuring. I can’t praise them enough and they are amazing at what they do!

Please donate whatever you can, it would mean the world to us.

And remember benign isn’t fine! The impact on a person’s quality of life can be enormous with a benign brain tumour. The brain tumour charity supports people with all kinds of brain tumours and their work is vital.