Jellybean Wing Walk – The Flight To Fight EB!

Jellybean is soaring to new heights to raise money for DEBRA UK, a national charity and patient support group for people living with the rare, and extremely painful, genetic skin blistering condition, Epidermolysis Bullosa, also known as ‘Butterfly Skin’.

To raise money for the life changing services that DEBRA provides, Liv and Abi will be Wing Walking on the 11th of June.

What is Wing Walking? It's a thrilling, and some may say terrifying, stunt which is akin to skydiving, although instead of jumping out of the plane you are strapped to it! These brave volunteers will each be mounted atop a plane, to ascend into the sky and soar at speeds of up to 120 mph. Some may say it’s only for the brave hearted, but in this case, Liv and Abi are doing it for the brave hearted people living through the excruciating pain of EB.

DEBRA UK is a pioneering charity that is advocating to stop the pain of EB. As of this year they have launched ‘A Life Free of Pain’ appeal that aims to raise £5m by the end of 2023 and will help to fund the life changing treatments to enable those with EB to live a life free of pain. In the latest YouGov study, only 7% of the UK population were aware of Epidermolysis Bullosa/EB and only 15% aware of DEBRA. If you, like many of us, were unaware of what EB is or the effect it has, please take a minute to watch the inspiring Isla tell her story here. It’s hard to watch but it's far, far harder to live with.

So please, help us raise £2,000 for DEBRA, and share your donation and our mission on social media to help spread the word about this incredible charity and the vital work they do.

#TheFlightToFightEB #StopThePain

To find further information about the fundraiser and how you can get involved, visit the jellybean webpage. The Flight to Fight EB will be taking off on the 11th of June at Headcorn Airfield, Shenley Road, Kent, TN27 9HX – all are welcome to join us!