Jed Robbie Behmber

Jed's fundraiser for CSF Leak Association - The Cerebrospinal Fluid Leak Charity

Fundraising for CSF Leak Association - The Cerebrospinal Fluid Leak Charity
£1,228
raised of £400 target
Donations cannot currently be made to this page
Running the length of Luxembourg, 11 September 2024
We advance understanding and awareness to find, fix and prevent all CSF Leaks

Story

On Wednesday September 11, I will be attempting to run the length of Luxembourg with two friends (Cam and Harjot). The challenge will stretch over 3 days, and we will cover roughly 107 kilometres. Luckily, we will have thorough support throughout from two very kind young men - Jack and Kai.

In planning this, I saw an opportunity to raise money and awareness for a charity that is close to my heart. For those who are close to me or my mum, you’ll know that she was bed bound for 3 years due to a CSF leak. Luckily, my mother is a mentally resilient and brilliant person, so she is able to navigate this as well as she can. Although resolved by an operation in 2021, she has a new CSF leak or a CSF venous fistula, which is yet to be located. This requires many more complex scans and an operation on her spinal cord. The CSF Leak Association charity is crucial in raising awareness of this often misdiagnosed condition.

Many thanks,

Jed

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About the charity

We’re a UK charity dedicated to CSF Leak sufferers we support and empower them to access specialised care. We co-ordinate and fund research, our goal, to ensure swift, accurate diagnosis and effective treatment of all CSF leaks. Together we can stop CSF Leaks, prevent disability and transform lives.

Donation summary

Total raised
£1,227.28
+ £258.00 Gift Aid
Online donations
£1,227.28
Offline donations
£0.00

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