Kit was born in July 2023. He was a much loved younger brother to Alice and a longed for second child for Mike and Gemma.

2 days after his 1st birthday he was unwell with vomiting and was sleepy. In A&E they discovered he had a low blood sugar which prompted investigations and admission. They discovered he had was in acute liver failure.

Although his liver recovered, 2 days after discharge his family were told the devastating news that Kit had POLG related mitochondrial disorder (Alper’s Disease in his case). There is no cure and given his age and presentation, he was likely to deteriorate rapidly.

Kit sadly died on the 15/9/2024.

He is missed beyond words can say but his family want his legacy to be one that can give hope to others effected by mitochondrial disease by supporting The Lily Foundation to support families and one day find a cure, so other families will not be told "there is nothing we can do".

On the 7th June 2025 my brother, Brad, and I will be taking part in a 24 hour race that involves running as many laps of the 8KM course as possible within the 24 hours. Our target for the race is to reach 100 KM each.

Please donate if you can and help me help them in memory of Kit. If you wish to find out more about Mitochondrial disease or how you can get involved yourself, please visit The Lily Foundation website for more information.

https://www.thelilyfoundation.org.uk/

Thank you