We first found out we were expecting in May 2016, after briefly discussing for another baby.

We already had our daughter Isabella, but having already experienced 2 miscarriages prior to having her, pregnancy was a very stressful time.

At our 12 week scan, we were informed our baby's bladder was enlarged, which was unusual at this gestation and informed us we would be referred to Birmingham Women's hospital for further tests. We were told it could be nothing, or it could be linked to a Chromosomal abnormality.

Three days later we were scanned at Birmingham. The bladder had gone back to a normal size, but he explained the kidneys looked as though they had been damaged by what could have been a blockage. They were confident no invasive testing was needed but they would continue to monitor.

After multiple scans, at 20 weeks our consultant was happy baby was growing well and that the amniotic fluid was as is should be, and referred us back to our local hospital Warwick, but would want to see us again in Birmingham at 28Weeks.

We felt everything was starting to look up although we knew our son may need some testing when he was born.

Ellen knew he wasn't as active in the womb as our daughter Isabella was, and she remembers telling her Mum that she felt something else was going on.

At the 28 Week Scan appointment in Birmingham they scanned in a lot of detail, checking everything. He was spending a lot of time, looking closer, re-checking and we started to worry something was wrong.

He later explained to us that there was a problem with our baby's heart & brain and suggested we needed an MRI scan to get a better picture. From that moment we knew our baby wouldn't be coming home...

We went back at 30 weeks and they confirmed our fears and more. Our boy had a cyst filling one of the ventricles in his brain, a discrepancy in his heart chambers, an extra digit on his hands and he would be most certainly blind. They explained these were conditions linked to Palau's syndrome. Which Ellen had been tested as having a 1:26,000 chance.

Our world fell apart. We decided to have an amniocentesis to give us a definite answer. This can back a week later confirming out son had full Trisomy 13.

We knew our options and although it was the most horrific choice for us to make, we felt that we had to protect our son from anymore pain and suffering. We decided to let him go to sleep in 'Mummys' tummy. Where he was most comfortable.

Our son Oscar William Taylor was born sleeping at 32 weeks on 7/12/2016 @ 17:20.

As most of you know, Oscar turned 7 last year, and wanting to do something different for his birthday and to raise money for Lily Mae I decided to run 7 miles every day for the whole of December….

So that got me thinking, how can I top that this year….. and here’s what I’ve decided!!!!

7 marathons, 7 days, the first week of December. With the last marathon being on Oscars birthday! 7th December! A total of 183.4 miles across 7 Days.

I will be doing this to raise money for The Lily Mae Foundation, so they can continue to support and provide care for families affected by possibly the most difficult times of their lives! Providing memory boxes, 1-2-1 support, sibling support days, Rainbow baby groups, Pregnancy after loss support groups and much more.

I’ve been through a lot of dark and tough times since losing Oscar, but running has always helped me mentally, so this challenge just seemed perfect to me!

Any donations will be gratefully received.

Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.