Crosby, West Shields, de Souza

Family fundraiser for Cure Gm1 Incorporated

Fundraising for Cure Gm1 Incorporated
£20,589
raised of £17,500 target
Donations cannot currently be made to this page
Dorney Lake 5k, 10k, Half Marathon
We fund GM1 Gangliosidosis research to save children's lives

Story

Thank you so much for visiting our JustGiving page.

Our Family will be participating in the Dorney Lake Run, a mixture of walking/running 5k, 10k and a half marathon, on Saturday 11th November to raise money for CureGM1 Foundation.

Infantile GM1 Gangliosidosis is a rare, life limiting and regressive condition. CureGM1 Foundation is funding research and clinical trials to find a cure.

https://curegm1.org

Our precious little Theodore and his cousin Oliver have both been affected by this heart breaking disease. We will be running for them and other children and families suffering from this condition. Theodore continues to smile and laugh everyday so we want to take some of his joy and turn it into something positive. What can be more positive than fundraising?

We so appreciate you taking the time to read our story. We welcome Family and Friends to join us on the 11th November to participate or watch from the cold sidelines!

https://www.runthrough.co.uk/event/run-dorney-5k-10k-half-marathon-november-2023/

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About the charity

The Cure GM1 Foundation is dedicated to hope and to directly funding research for a cure for GM1 Gangliosidosis, a lysosomal storage disease that attacks the brain and spinal cord and is always fatal in children. GM1 is a progressive and degenerative condition with an extremely broad and debilitating array of symptoms and complications. This nonprofit organization was founded by parents of children who suffer from GM1 who seek to save the lives of all those who suffer from this wretched condition.

Donation summary

Total raised
£20,588.31
Online donations
£20,588.31
Offline donations
£0.00

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