Story
Imelda is an amazing, determined little girl, who given the opportunity knows NO limits. With the right medical care, therapy, and equipment, she keeps surprising everyone with her ability to learn and defy the odds of her situation. Her biggest challenge is access to services and equipment, as the NHS is so underfunded, and services are either not available or overstretched. Therefore, Imelda relies heavily on privately funded therapy and equipment, without which she would have a very different quality of life today. We are going to perform a motorcycle ride out, from J&S motorcycle store Braintree, to Manningtree by the water to get an ice-cream, to raise funds for Ime's life changing therapies. The ride out will be held on Sunday the 13th of August, meeting at J&S Braintree for 10am. All are welcome, motorcycle or not! And of course, donations would be greatly appreciated!
Imelda has a unique chromosome disorder, she’s one-off! This shows itself in global development delay, hypotonia and infantile scoliosis for which she wears a brace for 22 hours a day to control the curve from progressing. Her epilepsy and kidney reflux are managed with daily medication and she’s learning to cope with nystagmus and a hearing impairment with regular check-ups. She struggles with sensory processing disorder which affects the way she moves, eats, drinks, and plays. She is under the care of many teams at Great Ormond Street Hospital. And this is where you come in - every penny donated to Just4Children goes directly into therapy and equipment for Ime, giving her the best possible chance in reaching her potential.
Physiotherapy costs between £60-£90 per hour, Smile, online occupational therapy in Canada is £45 for 30 minutes. C&D speech and language therapy is £70 for 45. minutes. Hydro pool hire £45 costs per hour. Intensive therapies work great with Imelda. We see such progress by the end of the week. A trip to Alex's Place in Stafford costs £1200, which includes sensory integration and Physiotherapy. The Bobath Centre which includes physio and speech therapy for 10 hrs is £900. A week with Physio goals 4 kids is £525. We would love to access therapy at NAPA in America (£12,000) or Smile in Canada (£7,000) but as yet haven't been able to raise what it costs for a trip.
Please keep supporting and tell people about this inspiring, smiling, giggly girl that continues to try her best all of the time.
For more information contact:
- Jodie Brown (from the Colourwheel nursery): Jodie.105@hotmail.co.uk
- Derek and Christina Holland (wonderful parents from the nursery who are actively supporting this fundraiser): 07766765229
- The Colourwheel Montessori Nursery at: hello@thecolourwheel.co.uk
Locations:
- J&S Accessories Ltd, Unit 5 Galley's Island, Braintree CM77 8GA (Meeting point)
- 81 New Road, CO11 1ET, England, United Kingdom (Manningtree)