Story
Many reading this will know that Chris was diagnosed with Primary Progressive Aphasia (PPA) in 2018. PPA is a rare form of dementia which primarily affects a person's ability to communicate, and because it is rare, there are limited resources available to research. Although he was subsequently diagnosed with Progressive Supranuclear Palsy, another horrible and debilitating degenerative disease, it was Chris' inability to communicate in the way he had once had, which was, for him, the most debilitating part of his condition and a constant frustration to him. For someone with his amazing articulation and vocabulary, it was a cruel twist of fate. It is for this reason that we have decided to raise funds on their behalf, rather than for any other cause.
Chris spent all of his formative years by the sea, initially in Essex, and then in Cornwall, but when Elinor was small, it was to the Isle of Wight, that we turned and we all loved it. We have so many happy memories of times spent there with Chris, both before and after his diagnosis, so in his memory, and to raise funds both for research into rare dementias and to provide fellow sufferers with a dedicated Centre for Rare Dementia Support, Elinor and I have decided to walk the Isle of Wight Coastal Path (72 miles) in her school holidays this year.
Chris loved his golf and it was an old family joke that Chris never walked anywhere without a golf club in his hand, so we too will be walking with a golf club in our hands.