Our beautiful baby girl Hattie sadly passed away on 19th September 2023 at just 12 weeks old from a Mitochondrial Disease. If like us, you have never heard of this condition, let us try to briefly explain.

Mitochondria are effectively the power stations of the body. If they don’t function properly and produce enough energy for the body’s cells, then mitochondria dysfunction occurs. Mitochondria exist in nearly every cell of the human body and create 90% of the energy you need to sustain life and support organ function. Mitochondrial diseases are long-term, genetic and life limiting with very few treatments and currently no cure.

Since Hattie's diagnosis we have realised that Mitochondrial Disease is not a condition many people are aware of. We therefore would like to raise money in Hattie's memory to help change this & find a cure. The Lily Foundation is a charity that aims to give hope, answers and support to the many other children and families that face the challenges of this disease today.

Did you know every twenty minutes a child is born who will develop Mitochondrial Disease by the age of 16!

Please donate in Hattie's memory and watch out for future fund raising events to help us fight Mitochondrial Disease and fight for hope.