This is my second year running in this event to raise money for the SMS foundation in support of the wonderful Izzy.

SMS is a rare genetic disorder affecting approximately 1 in 25,000 births. Children with SMS like Izzy suffer from a variety of difficulties including chronic sleep disturbances and difficulty with communication, along with a variety of other, often complex, medical issues. There is no respite and every day is a battle to get Izzy the support she needs and deserves.

Over the last twelve months Izzy has made incredible progress in so many areas. She is a great little Makaton singer, is saying colours and even counting.

In many ways Izzy, is lucky. Her amazing mum was a phenomenal special needs teacher and a specialist school before Izzy was diagnosed, but now all her time is spent caring for her daughter.

Izzy is so loving and brings so much joy to the world, but that doesn't change how hard it is for her parents, or any parents of SMS, particularly when so little is known about it.

Once again, I am hoping that by raising money for the SMS foundation, I will also be raising awareness and support for those affected too.