My very good friends, James & Sarah have recently received the devastating news that their little boy, Henry, has Duchenne muscular dystrophy (DMD). At just 2 and a half years old Henry received this rare and life limiting diagnosis.

DMD is a devastating muscle-wasting disease which will strip Henry of his ability to walk and live an independent life. The current expectation of those diagnosed with DMD is that they will slowly lose the use of their limbs, leaving them wheelchair dependent between the ages of 8-12. Their life expectancy is grossly shortened, and they are only expected to live into their 20’s or 30’s. Duchenne causes respiratory and cardiac failure with many needing a ventilator to help with breathing in their later years. There is currently no cure

In support of Henry, his family and all other children with DMD, I have decided to run the Stratford upon Avon half marathon on 27th April 2025. I enjoy running but have never ran anywhere near this distance…!!

Raising awareness and funds will enable Duchenne UK to continue with vital research and drug development to give these young children a chance!

Any donations, no matter how much will be gratefully received.

I’ll try to remember to post updates on my running on my instagram: hannahharriesx