On 7th April, 2024 Chris, Simon & Gabriella will be running the Paris Marathon for Action Duchenne.

Action Duchenne is particularly close to our hearts as our nephew and grandson Edward, was diagnosed with Duchenne muscular dystrophy in 2018. Duchenne muscular dystrophy (DMD) is a progressive condition diagnosed in childhood. It causes all the muscles in the body to gradually weaken and is sadly life limiting for the boys who are diagnosed with the condition.

Edward is a brilliantly cheerful, witty and inquisitive seven year old boy, and whilst his movement may be limited he more than makes up for it with his character. The illness has unfortunately already had a significant impact on his lifestyle, including a lot of hospital trips, and regular use of his wheelchair. 

There is currently no cure for Duchenne, but there is hope, especially with all the hard work done by the people involved with the charity and they have a very clear vision: a world where lives are no longer limited by Duchenne muscular dystrophy. While we hope that research and clinical trials will one day lead to a treatment, or cure, for Duchenne, it is vital to support families living with the condition today, which is exactly what the charity does.

Any donation big or small is hugely appreciated and thank you all so much for your support!