Story
Fundraising for the ever important Debra Ireland. The lads and I will be cycling from Portmarnock to Galway on the May bank holiday weekend. Why Debra Ireland ? myself and the lads have been a part of Debra for a number of years now as my good friend Kalebh’s brother suffered from the disease known as Epidermolysis Bullosa or EB for short.EB is a group of rare diseases that cause the skin to be fragile and to blister easily. Tears, sores, and blisters in the skin happen when something rubs or bumps the skin. They can appear anywhere on the body. The fragileness of the skin gives EB the nickname the “butterfly disease” as those who suffer from EB, their skin is as delicate as a butterfly. Unfortunately EB isn’t state funded with most funds coming from private donations and charity work along with research funding.
Any donations would be appreciated.
Come join us to spread the word and raise money!