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Gillian Keeney-shaw

EDS UK Dazzle Walk 2023

Fundraising for Ehlers-Danlos Support UK
£220
raised of £100 target
Donations cannot currently be made to this page
EDS DAZZLE WALK, 17 June 2023
Don your razzliest, dazzliest zebra attire this May and join the EDS UK Dazzle Walk 2023.

Story

We will be joining others at pugneys country Park, wakefield to walk/roll in aid of EDS uk

For many people, the journey to a diagnosis of an Ehlers-Danlos syndrome (EDS) or hypermobility spectrum disorder (HSD) has been a long and challenging road. Poor awareness of the conditions amongst medical and healthcare professionals means they can go undiagnosed for many years. People are often misdiagnosed with other conditions, being given incorrect or unnecessary treatment, or no treatment at all. Early diagnosis and recognition of EDS and HSD are key to improving quality of life.

A greater understanding of the complexities and multi-systemic nature of EDS and some types of HSD from health professionals in all aspects of care, including rheumatology, physiotherapy, and nursing, can ensure a quicker diagnosis and more appropriate care.

Societal awareness and understanding of these conditions, their comorbidities, and chronic illness, in general, can also vastly improve the lives of our community. From education to employment, from relationships to friendships, and in understanding disability and often-invisible illness: understanding the impact these conditions have on our lives, and their fluctuating nature, goes so far in improving well-being.

please help me in raising awareness and funds for EDS uk

Click here to find out how you can get involved this May: https://www.ehlers-danlos.org/help/raise-money-in-your-community/mayawareness/

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About the campaign

Don your razzliest, dazzliest zebra attire this May and join the EDS UK Dazzle Walk 2023.

About the charity

Ehlers-Danlos Support UK

Verified by JustGiving

RCN 1157027
Ehlers-Danlos Support UK improves quality of life for people living with the Ehlers-Danlos syndromes (EDS). We work across the UK to support, advise and inform those living with the condition and the medical professionals working with them.

Donation summary

Total raised
£220.00
+ £26.25 Gift Aid
Online donations
£220.00
Offline donations
£0.00

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