Story
I will be running the Battersea Half Marathon on the 7th September for World Duchenne Day, to back Super Jack and to raise money and awareness in hope to find a cure for him and others affected by Duchenne Muscular Dystrophy.
Muscles.
We use them to move.
Walk, eat, smile, cry.
Pump blood around our bodies.
To breathe in and out.
Our muscles matter.
By fundraising for Muscular Dystrophy UK, I’m helping to fund world-class research into effective treatments, and life changing support for the 110,000 people in the UK living with a muscle-wasting condition.
I've worked closely with Louise for a number of years, and have been touched by her family's story, and her son's diagnosis with Duchenne - a rare Muscular Dystrophy condition (DMD). DMD is a genetic disease causing muscle weakness and wasting and represents the most common and severe form of muscular dystrophy. Boys typically rely on full wheelchair use by their teens, accompanied by various additional equipment as the condition progresses.
Regrettably, there is no cure. While research is underway for potential treatments, there remains a substantial need to advance to a stage where readily available treatments can prolong and enhance the lives of boys affected by DMD.
I've had glimpse in to the challenges Louise and her family have faced, and would love to support in anyway I can. Any donations would be hugely appreciated!!
Net proceeds from fundraising will be split 80/20% between MDUK’s research into duchenne muscular dystrophy and help support Jack with future welfare needs.
Thank you so much <3