Story
Im part of whats called 'the missing millions'
One day 2 years ago " I was a healthy 42 year old sociable, full of life & like most of us I went to work one day not knowing that that day would change my life forever & would be my last working day.
From what started as a virus, turned out to be the dreaded covid-19, little did I know then it would go into my brain & central nervous system & effect every organ & living cell in my body, turning into Long covid with catastrophic consequences.
It was a dark time with unimaginable pain, the unknown, we tried doctor after doctor for answers or treatment. I tried every medication given with horrific side effects. But nope nothing worked.
Eventually being diagnosed with Myalgic Encephalomyelitis (M.E) a long term (chronic) neurological disease that causes symtoms affecting many body systems, more commonly the nervous & immune system.
My new nickname for myself was the living dead. That's how it felt.
I never gave up thanks to my amazing family & friends who are kindly going to Walk for ME starting from Kello bridge through upper Nithsdale to Sanquhar, to raise money for biomedical research. As my walking is very limited these days.
Recently we found a fantastic specialist Long covid & ME neuroscientist that has put me on drug trials that seem to be making slow improvements. Its still the unknown but there is light now at the end of the dark tunnel.
Nothing is proven which leads me to this. To fundraise for biomedical research into ME & Long covid. As there is no specialist nurse or doctor in Scotland to help me or the thousands of others like me. It's so badly needed.
'doctors do not treat us and science does not study us. How could a disease this common and this devastating have been forgotten by medicine?" Jennifer Brea
Only biomedical research can find the causes of ME/CFS, improve diagnosis and treatment, and, ultimately, arrive at a cure. That’s why research is our focus.
Please help me find a cure, by sharing, donating & walking for ME for me.
Thanks
Emma x