Jude was born in July 2018 with an ultra-rare are neurological condition called Schinzel-Giedion Syndrome (SGS).

SGS is a complex condition caused by a spontaneous gene mutation mutation which results in disruption to the normal development of an embryo.

Children born with SGS can have many distressing symptoms such as frequent seizures, severe developmental delay, cancers and skeletal abnormalities. They often have a very limited life expectancy with many passing away during infancy.

Jude had many of the most distressing symptoms of SGS. His list of consultants, nurses and carers became endless as did his list of medications and equipment. He required significant care and really turned our lives upside down and inside out.

Jude passed away in March 2022 quickly but peacefully, leaving a huge hole in many lives. He is remembered every day by his family and friends, who always look for him in rainbows and hear him in a blackbird's song.

Steve, Fraser and I are humbled to have received so much wonderful support from our family and friends, who have stood by us through out Jude's life and beyond. These people are continuing their support this summer by joining us on a 21 mile walk along part of the Cleveland Way from Scarborough Castle gates to Whitby Abbey.

There will be several family and friends joining us on Saturday 8th July as well as many who will be taking on the challenge of 21 miles over the course of July at their own pace.

We are asking for sponsorship to donate to the SGS Foundation. The SGS Foundation was created to bring hope to children and families affected by SGS worldwide. It aims to provide support to families, raise awareness of SGS and support medical research that will help to find better treatments that will improve the quality and length of life of children living with SGS.

Please give as generously as you can to help keep us putting one foot in front of the other on the Cleveland Way and in the month of July.