As Emily's 4th birthday approaches, our hearts are full of both reflection and hope.

Our little girl, living with Angelman syndrome, a rare genetic disorder characterised by developmental delays, lack of speech, and distinct neurological features, continues to amaze us every day with her love and determination. This year, we're inviting you to celebrate Emily in a very special way - by joining and supporting Emilython.

Instead of birthday gifts, we're asking for your support for FAST UK, an organisation that's given us hope through their research into treatments for Angelman syndrome. Your donation can lead to a brighter future for Emily and others living with Angelman syndrome.

Thanks to your generosity last year, we've contributed to the Natural History Study based at Oxford University. It follows 40 participants to understand the natural course of Angelman syndrome and prepare the UK for more clinical trials in the future.

This year, Emilython is our way to challenge ourselves and Emily. We will walk together with Emily for, at least, 1 hour - very likely with many breaks in Richmond Park on 28 April - more details to follow. Every contribution, no matter the size, helps fuel vital research and support. It's a chance to make a real difference.

You can support us by joining us on the day, spreading the word or donating to this page. Your support means the world to us and has a tangible impact on our community. It's not just about funding; it's about building a community of love and hope around Emily and all those living with Angelman syndrome and other disabilities.

Thank you for joining us in dreaming big for Emily.

Big thanks,

Irina, Vlad, Oliver and our brave little Emily 🌈🎂

*Please don't forget to select Gift Aid if you're a UK taxpayer, and inquire about employer donation matching to maximise your impact.