I am running the marathon for my cousin Sasha because she can't.

20 years ago Sasha was diagnosed with a rare condition called Friedreich's Ataxia which robs her of all her motor functions - walking, talking, even turning over in bed on her own.

You rely on help for everything from moving to communicating. You can, however, think for yourself.

Frustration, depression, pain and loneliness are only some of the words that one associates with FA.

Ataxia UK helps by raising awareness and money for research and assistance into FA and similar debilitating Neurodegenerative Conditions.