In August 2006, our third baby girl Lily was born, 5 weeks early, small but otherwise, we thought, healthy. When she was 7 weeks old, it became apparent that something was very wrong with Lily. After a 10 day hospital stay, ending in intensive care and on a ventilator we were told that Lily had a mitochondrial disease, for which there is no cure and no treatment. We were told that Lily was going to die. The prognosis for Lily was poor, but she survived for 6 months which gave us an opportunity to make memories and fully understand more about mito. As Lily's journey ended. The Lily Foundation journey began,

Lily would have turned 18 this August. To celebrate her milestone birthday and in support of all the incredible families that we have met on our journey, it felt appropriate that we should do something as a family. I actually cannot believe I am writing this, but Dave (it is alright for him he has 11 marathons under his belt!!!), Katie (she can already run 10km easily), Rosie and I (not runners at all)...have decided to run the London Landmarks Half Marathon in Lily's memory and raise money to help find a cure for this very cruel and horrible disease that took away our baby girl, who never even had the opportunity to celebrate her first birthday.

Please, please, please sponsor us!!!!

We are running 13.1 miles to help The Lily Foundation beat mitochondrial disease.

Every day in the UK a child is born with this genetic condition that has no treatment or cure.

The disease means that the cells of the body can not make enough energy to survive and eventually die. This effects vital organs and can lead to organ failure. The condition is life limiting and too many lives are taken too early.

The Lily foundation is dedicated to change this through funding vital research and supporting those affected.

We want to help them and need your help too!

Please donate what you can as every penny helps and will give hope.

Thank you