Ed's fundraiser for The CJD Support Network

Edward Haslam is raising money for The CJD Support Network
In memory of Paul Haslam
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Lakeland 50 · 27 July 2024

The CJD Support NetworkVerified by JustGiving
RCN 1097173
The CJD Support Network offers advice, information and support for patients, carers and professionals involved in any form of suspected or confirmed CJD. We offer emotional and practical support; disseminate new information as research develops and offer advice for those who may be deemed at risk.

Story

In 2022 we lost my Dad, Paul, to Sporadic CJD at the untimely age of 60. Creutzfeldt-Jakob disease is a rare and fatal neurodegenerative disorder that affects the brain and nervous system. It can affect anyone, it's currently untreatable and ultimately fatal.

On July 27th I will be running the Lakeland 50 (don't be fooled - that's 50 hilly Lake District miles, not km!) in aid of The CJD Support Network.

CJD is an awful disease that can affect anyone and progresses at a scarily rapid rate - sadly death often occurs within weeks of diagnosis. The CJD Support Network is the only UK charity providing emotional and practical support for all forms of CJD & prion disease. They helped to organise and provide support, guidance & care for my Dad and our family as the illness progressed.

Any support you give will allow more families to be supported and continue to raise awareness of CJD.

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Donation summary

Total
£3,197.23
+ £643.13 Gift Aid
Online
£3,197.23
Offline
£0.00

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