Edward Haslam

Ed's fundraiser for The CJD Support Network

Fundraising for The CJD Support Network
£3,198
raised of £2,000 target
Donations cannot currently be made to this page
Lakeland 50, 27 July 2024
In memory of Paul Haslam
The CJD Support Network

Verified by JustGiving

RCN 1097173

Story

In 2022 we lost my Dad, Paul, to Sporadic CJD at the untimely age of 60. Creutzfeldt-Jakob disease is a rare and fatal neurodegenerative disorder that affects the brain and nervous system. It can affect anyone, it's currently untreatable and ultimately fatal.

On July 27th I will be running the Lakeland 50 (don't be fooled - that's 50 hilly Lake District miles, not km!) in aid of The CJD Support Network.

CJD is an awful disease that can affect anyone and progresses at a scarily rapid rate - sadly death often occurs within weeks of diagnosis. The CJD Support Network is the only UK charity providing emotional and practical support for all forms of CJD & prion disease. They helped to organise and provide support, guidance & care for my Dad and our family as the illness progressed.

Any support you give will allow more families to be supported and continue to raise awareness of CJD.

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About the charity

The CJD Support Network

Verified by JustGiving

RCN 1097173
The CJD Support Network offers advice, information and support for patients, carers and professionals involved in any form of suspected or confirmed CJD. We offer emotional and practical support; disseminate new information as research develops and offer advice for those who may be deemed at risk.

Donation summary

Total raised
£3,197.23
+ £643.13 Gift Aid
Online donations
£3,197.23
Offline donations
£0.00

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