I am raising money for SMA UK. My family are carriers of the SMA gene and my awesome nephew (Alfie, 15) has the condition. He has been supported by SMA UK in the past - help with a buying a new chair, access to care/services/treatment - and it's time I raised some money for this cause so that they can continue making a huge difference to those with the condition and the families around them.

Established for almost 40 years, SMA UK are a charity that supports, campaigns and advocates so that everyone affected by Spinal Muscular Atrophy can access the best care, services and treatments, and benefit from continued research. We offer adults, young people, parents, relatives and friends emotional support, practical advice and guidance from our experienced team and provide reliable health and social care information about SMA.