Hello there!

We'd like to invite you to be a part of our mission to make a real difference in the life of our almost 3-year-old daughter, Emily. 

Emily lives with Angelman Syndrome, a rare genetic condition that affects her cognitive abilities, gross and fine motor skills, and sleep. 

We're raising funds for FAST UK to support research and the Natural History Study, which will help find a life-changing therapeutic and improve the lives of those affected by this condition.

Last year's FAST Gala theme was "Dream Big," and we believe that with your support, we can help Emily expand her dreams. 

She's making great strides, too! Emily has been working hard to develop her walking and motor skills, and she's even started eating with a spoon. We couldn't be more proud of her! She loves pushing her bike around, and we're hopeful that she'll be able to ride it soon.

We're also working on helping Emily communicate with us more effectively. It's a long journey as Emily doesn’t have any spoken words, but we're committed to seeing it through. We've been working on her individual support plan for over a year now, and we're hoping she'll get the support she needs at the nursery and through therapy soon.

As a parent of a child with additional needs, I can tell you that we have to fight for every little thing for Emily. The needs of those who can't advocate for themselves are often overlooked by policymakers and budget allocators. That's why every donation, big or small, makes a meaningful difference in the lives of those affected by Angelman Syndrome.

Your donations go directly to the Natural History Study in Oxford, which costs £250k per year to run. We're also doing everything we can to support the community and raise awareness for Angelman Syndrome through FAST UK.

If you'd like to follow Emily's journey, you can check out my Instagram page. I also help run the FAST UK account, so please give us a follow and see what we're up to!

Thank you for your support. Let's dream big for Emily and help advance the research towards a cure.

A kind reminder… If you are a UK taxpayer, please don’t forget to select Gift Aid. Also, it’s worth checking if your employer can match your donation, as this would practically mean doubling your donation in some cases - which is amazing.