Story

Harri is aged 6 from Bournemouth. He suffered an Hypoxic Ischemic Encephalopathy event at birth which left him with multiple organ failure. He spent his first 3 weeks in Neonatal Intensive Care Unit where he received brain cooling treatment. Harri gradually recovered but was left with a severe brain injury. He was later diagnosed with Cerebral Palsy, Global Development Delay and Epilepsy. He has spasticity in all his limbs and his gross motor functions are severely impaired making it extremely challenging for him to use normal movement patterns. This causes him to walk on tip toes and results in issues with his balance and coordination, making him fall frequently. He is fiercely independent and is desperate to be active and play like his peers, making it extremely difficult to keep him safe and unfortunately results in many visits to A&E.

Inspite of all that Harri has been through in his short life he has exceeded everyone's expectations and continues to improve his mobility daily through his stubborn determination and will to achieve. However, no matter how hard he tries and how many procedures and interventions he endures the spasticity in his muscles continues to prevent him from doing everything he would like to do, safely, like sitting, standing, walking, running, jumping and playing.

Harri has recently been offered the chance to have Selective Dorsal Rhizotomy (SDR) surgery to permanently remove the spasticity in his legs, although this isn't available on the NHS for him meaning it must be self funded. Post surgery he will require intensive physio rehab for 2 years, along with continuous focus at home to build his strength and help him learn new patterns of movement to make it more safe for him to mobilise independently. This really is life changing surgery for Harri!

He has already done the hard work to get him in the best shape for surgery and is ready to go but we need your help to make it happen. Please help us to give our beautiful, determined little boy this opportunity.

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