Disa Hunter

Disa's fundraiser for Alport UK

Fundraising for Alport UK
£2,580
raised of £500 target
Donations cannot currently be made to this page
Pop Up Charity Shop, 10 November 2023
Alport UK

Verified by JustGiving

RCN 1154774
We empower families with Alport Syndrome to enjoy the best possible quality of life

Story

Thanks for taking the time to visit my JustGiving page.

I'm raising money for the charity Alport UK which is a patient-led organisation dedicated to empowering people living with Alport Syndrome to enjoy the best possible quality of life.

Alport Syndrome is a rare inherited disease that can cause kidney failure, deafness and eye abnormalities. It can impact a large number of people in a family. It is the second most common form of inherited kidney disease.

After being diagnosed with Alport's Syndrome as a teenager, I felt very isolated as I didn't know anyone else diagnosed with it. I kept this hidden for many years, only telling a few friends/family about it. It wasn't until Covid-19 hit, I started doing more research into Alport's and becoming more open about it. I found Alport UK through Facebook and the rest is history! I was able to connect with other individuals across the world who are affected by Alport's. I've been to meet-ups in Cardiff and London and it was amazing to be given the opportunity to feel connected and understood. Alport UK also have the "Don't Wait Fund" which was set up by Sam Clarke to inspire individuals affected by Alport's to experience a new challenge - such as a new exercise, sport or activity. It was through this fund that I was able to get my paddleboard. This has been a huge benefit for my physical and mental health.

Alport UK has done so much to support me so I want to give back so they can continue to support others and raise awareness. Therefore, I am doing a pop-up charity shop on Friday 10th and Saturday 11th of November at Staney Hill Hall in Lerwick to raise funds.

I have set up the Just Giving page so I can upload the donations on to here. Donations are also welcome on here from anyone. If you cannot make it to the pop-up shop but still would like to donate then it would be appreciated.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

Thank you!

Share this story

Help Disa Hunter

Sharing this page with your friends could help raise up to 3x more in donations

You can also help by sharing this link on

About the charity

Alport UK

Verified by JustGiving

RCN 1154774
Alport UK is a patient-led charity dedicated to facilitating a support and information network for all those affected by Alport Syndrome. Our Vision is to ensure that all individuals and families with Alport Syndrome feel empowered to enjoy the best quality of life.

Donation summary

Total raised
£2,580.00
+ £40.00 Gift Aid
Online donations
£165.00
Offline donations
£2,415.00

* Charities pay a small fee for our service. Find out how much it is and what we do for it.