Story
Thanks for taking the time to visit my JustGiving page.
I'm raising money for the charity Alport UK which is a patient-led organisation dedicated to empowering people living with Alport Syndrome to enjoy the best possible quality of life.
Alport Syndrome is a rare inherited disease that can cause kidney failure, deafness and eye abnormalities. It can impact a large number of people in a family. It is the second most common form of inherited kidney disease.
After being diagnosed with Alport's Syndrome as a teenager, I felt very isolated as I didn't know anyone else diagnosed with it. I kept this hidden for many years, only telling a few friends/family about it. It wasn't until Covid-19 hit, I started doing more research into Alport's and becoming more open about it. I found Alport UK through Facebook and the rest is history! I was able to connect with other individuals across the world who are affected by Alport's. I've been to meet-ups in Cardiff and London and it was amazing to be given the opportunity to feel connected and understood. Alport UK also have the "Don't Wait Fund" which was set up by Sam Clarke to inspire individuals affected by Alport's to experience a new challenge - such as a new exercise, sport or activity. It was through this fund that I was able to get my paddleboard. This has been a huge benefit for my physical and mental health.
Alport UK has done so much to support me so I want to give back so they can continue to support others and raise awareness. Therefore, I am doing a pop-up charity shop on Friday 10th and Saturday 11th of November at Staney Hill Hall in Lerwick to raise funds.
I have set up the Just Giving page so I can upload the donations on to here. Donations are also welcome on here from anyone. If you cannot make it to the pop-up shop but still would like to donate then it would be appreciated.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.
Thank you!