On 7th June 2025, Me (Dad), my son (Billy) and my brother (Steve) are Climbing Snowdon for Cavernoma Awareness! 🏔️

At the end of 2019 the bottom fell out of our world. My then 9yr old daughter Laila was having severe headaches and sickness during a period of about six weeks, this turned out to be a bleed on the brain. After a stay in hospital and a lot of investigating she was diagnosed 4yrs ago with a Cavernoma!

We had never even heard of cavernoma before, this was a scary time for us all! we couldn’t get our heads around what had happened and why! Watching Laila try to recover from this bleed on the brain was really hard as we didn’t know what the future held for her. Every headache wondering if it was another bleed, there were days she couldn’t move off the sofa or get out of bed. Her life had changed so much in a short space of time. The things she once enjoyed she could no longer do.

The result of having a rare brain condition still has a massive impact on her life, having to change schools, dealing with epilepsy, brain fog, fatigue, personality changes and the unknown of potentially having brain surgery if another bleed occurs, affect her daily. This is just the tip of an iceberg of what she has been through and still going through suffering from Cavernoma, a condition that can’t be seen.

Laila still has a long journey ahead of her which her and us as a family, take one step at a time with.What we do know is she is a true fighter no matter what life throws at her and we are proud of how far she has come!