Story
Hi Everyone, you may be aware that my son Odhrán was born in March 2023 with a rare condition called Tracheo-Oesophageal Fistula (TOF) with Oesophageal Atresia (OA) and required immediate surgery after his birth to correct this. Due to his condition Odhrán has a weak trachea and ended up with a tracheostomy in August 2023.
This Monday 26th Feb marks the start of TOFS awareness week in the U.K. and I plan on completing 5k a day from then until 21st March with a view to raising some much needed funds for the TOFS charity who provide lifelong support for those born unable to swallow.
Odhrán turns 1 on March 21st and we would like to celebrate this around a final run/walk with our families and friends (full details to be disclosed closer to the time).
The TOFS charity and Facebook group have provided so much support and advice to us over the past 11 months and we would love to raise some much needed funds for the charity. Unfortunately the TOFS Charity receives no support from the Government and relies completely on donations from our supporters so any donation will be greatly received.
Finally I would like to encourage anyone who wishes to join me on a run to get in touch as I’d only be too glad of the company and chat along the way. Just drop me a DM and we can arrange a day and time that suits.