Story
In early 2023, my daughter Jess was diagnosed with cystic fibrosis. After a number of unexplained symptoms affecting her health over a period of time, Jess was admitted to King's Hospital, London in order to treat a serious lung infection. Subsequently, she was diagnosed with cystic fibrosis, which came as a big shock to the whole family as Jess is 22 years old and most people are diagnosed at birth. It has been a huge adjustment for Jess and she continues to amaze us everyday with her positive attitude and approach to life with this condition.
Cystic fibrosis is life limiting and people with the condition experience a build up of thick sticky mucus in the lungs, digestive system and other organs causing a wide range of challenging symptoms affecting the whole body. The Cystic Fibrosis Trust is a UK-wide charity uniting for a life unlimited for everyone and their mission is to create a world where being born with cystic fibrosis no longer means a life long burden of care and an early death.
The Cystic Fibrosis Trust is at the forefront of innovation and funds vital research, improves care, provides support to clinical teams in the NHS and campaigns on fair access to new medicines that have the potential to transform the lives of people affected by cystic fibrosis.
As a family, we would like to give something back and I will be running the London Marathon 2024 along with my son Ben, to raise as much money as we can for the Cystic Fibrosis Trust. We want to show Jess that we are all on this journey with her and will do whatever we can to help.
Every donation will make a huge difference and thank you in advance for your generosity and support.