Our wonderful friends Simon and Kerry had their worlds turned upside down when their amazing son Bill was diagnosed with mitochondrial disease.

Sid and Kerry have been such an inspiration with how well they have coped with this news and all they do for their family. Sid and Kerry have spent the last few years raising funds for Lily through a variety events including half’s, marathons and ultras as well us other events and charitable donations.

This has inspired me to take on a challenges of my own to help raise awareness and funds for Lily's. But this year will be taking on a very personal challenge in taking part in the London Marathon. I remember growing up watching this event pass my home and going down as cheering people on. I never understood what made people want run for so long but now I know how much a special cause can push you on and make you want to what you can to help and I ask if anyone can spare anything for this worthy cause it will be greatly appreciated.

The Lily Foundation was founded in Lily's memory, having lost her battle to Mitochondrial Disease at just eight months old. The charity aims to give hope, answers and support to the many other children and families that face the challenges of this disease today. Did you know every day in the UK a baby is born who will develop Mitochondrial Disease! There is no cure for this disease which is for many, debilitating and life limiting. Please stand with us and fight Mitochondrial Disease and fight for hope. I am running 26.2 miles ...... please donate if you can.