Why I am doing this and some info about Axial Spa.

Axial Spa (or AS as it is commonly referred to)is, for most sufferers a painful, progressive form of inflammatory arthritis and there are a quarter of a million people with AS, which makes it more prevalent than multiple sclerosis and Parkinson’s combined!

This is also a condition I've had since my mid-teens, although thankfully I get away very lightly compared with most, hence being able to take part in events like this!

When left untreated, the condition can lead to irreversible spinal fusion, causing severe disability. Other areas such as the eyes and bowel can also sometimes be involved.

AS has a significant impact on a patient's life. Additional symptoms can include fatigue, sleep problems, depression, and sexual dysfunction, which can profoundly impact health-related quality of life and limit work, leisure, and daily activities.

The spinal fusion so common with AS, can reduce range of motion, increase risk of fracture, cause the spine to curve forward, make the rib cage stiff and restrict the ability of the lungs to do their job. In short, it's very nasty.

Why your support is essential

NASS is the only charity in the UK dedicated to supporting people with axial SpA. NASS doesn’t receive any government funding. We rely on your kindness and generosity, and other people like you, to help us transform the diagnosis, treatment and care of people with axial SpA and help more people live well with the condition sooner.

Why your support is urgent now

As the NHS recovers from the pandemic, thousands of people with axial SpA are being left to cope with debilitating pain, exhaustion and fatigue alone. The current economic climate has meant that we have seen a reduction in fundraising income. With a cost-of-living crisis, more people than ever need support to claim life-changing disability benefits they are entitled to.

In summation, anything you feel you can donate to this cause will be hugely appreciated by me, NASS, and the many tens of thousands of people suffering with this disease.

Thank you.