Instead of wedding gifts we have decided to support this small but excellent charity (Smith-Magenis Syndrome Foundation UK) that really needs our help.

Our Godson, Theo was diagnosed with Smith-Magenis Syndrome (SMS) a few years ago. A rare syndrome that our good friends Julian & Lucinda Cobby have had to understand whilst caring for their boy. On a recent FB post they wanted to sum up life in Theo’s shoes

I'm Theo and I have SMS (Smith-Magenis Syndrome).

1. You can't always see that I have this disability.

2. I sometimes act negative in certain situations, but I can't help it.

3. I'm missing a piece of chromosome, I can't be cured. But some meds can help me a little with my behaviour.

4. I do not act according to my age.

5. I am smart in ways you can't see.

6. I am warm and love hugs.

7. I want to be welcomed, accepted and loved just the way I am.

8. I don’t sleep like you, I'm often a night owl and sleepy during the day.

9. I may not be able to talk clearly and I can use a lot of sign language, but I can understand everything you say!

10. My parents don't mind if you ask them questions about me.

11 I'm a charmer.

12. I am an extraordinary child who has a lot to offer the world.

Love from me Theo x

Mandy & I have watched our lovely Godson overcome some giant hurdles to get where he is today. However there is much research to fund in order to help him and lots of other kids like him through this complex condition.

Please donate whatever you wish and - Thank you x

Mandy & Danny