Story
My brother, Daniel, suddenly became ill in December 2022 and gradually got worse over the following months. He lost his appetite, lacked energy, was severely dehydrated, had low blood pressure causing dizziness and fainting, was constantly vomiting and lost over 4 stone. At first, doctors were convinced this was a result of Covid-19, however, after many trips to A&E and 1 week in the hospital, he was finally diagnosed with Addison's Disease. It was later confirmed that what Daniel had gone through was an Adrenal Crisis, which can be fatal if left untreated.
Addison’s Disease, also known as primary adrenal insufficiency or hypoadrenalism, is a rare autoimmune disorder of the adrenal glands in which the glands do not produce enough hormones, such as cortisol and aldosterone. This is such a rare disease with approximately 9,000 people in the UK having the condition and over 300 new cases being diagnosed each year.
Managing Addison's Disease requires life-long medication and close monitoring to prevent more complications. Whilst in hospital, Daniel was also diagnosed with Graves disease, which along with his Type 1 Diabetes, makes it even more important to monitor his medications carefully and be extra cautious should any unusual symptoms occur.
Due to the condition being so rare, we had no knowledge or understanding just how serious it is. The ADSHG provides vital information and supports anyone affected by the disease.
My goal is to raise as much money and awareness for this condition in order to help everyone affected. I will be running 5km every day in the month of August, so any money donated will be greatly appreciated. However, even if more people are more aware of the condition that will still be rewarding.
Thank you! x
To find out more, please visit: https://www.addisonsdisease.org.uk/