Shalom,

Firstly thank you for visiting the page, I truly appreciate it.

On May 17th 2025 I am running 100km (62 miles) along the Dorset coast to raise money for the Motor Neurone Disease Association (MNDA). As part of building up to this challenge, I will also be running 25 miles along the Cornish coastline (25th Jan) and running 4.1 miles, every hour on the hour, until my fatigue is fatigued, at the end of March (date TBC). Lastly, as part of the fundraising fun, I will don a mullet and moustache up until the event and during (hence the challenge name).

The furthest I have previously run is 34 miles across Dartmoor and it was harder than anything I’d ever physically done. The 100k will be a gruelling event and will require a long period of consistent arduous training through the cold winter months. There is a reason the UKSF use the cliffs around Dorset and Poole for training…

However, this challenge is absolutely nothing in comparison to living with MND, supporting a loved one with MND or losing someone to MND. It is a privilege to be able to fundraise for the MNDA and to be able to train for the event itself.

(‘Mullet Moustache & MNDA t-shirt’, 2024)

Motor neurone disease (MND) is an uncommon, but devastating, condition that affects the brain and nervous system. It causes severe neurological weakness that gradually gets worse over time. Awareness of MND was raised nationally by ex rugby league hero Rob Burrow, who sadly passed away recently, and fellow player, and Rob’s best friend, Kevin Sinfield who ran 100miles in one go to fundraise for the MND association.

There's no current cure for MND, but there are treatments to help reduce the impact it has on a person's daily life. My step Mum supports people with MND access communication devices so they can continue to communicate when they lose their ability to speak and so I have a small, although limited, understanding of the difficulties people and their families face. Some people live with the condition for many years and MND can significantly shorten life expectancy and, unfortunately, eventually leads to death.

Please give what you can in support of future research and in support of those affected by MND. Many many thanks. It really means a lot and I will use any supportive messages and donations as much needed fuel as I continue to train hard.

Warmest thanks,

Dan