Story
Hi,
Welcome to our justgiving page. Me and my partner Mike are doing various things to raise money for FAST UK, A charity that is close to our hearts because they are engaging in clinical trials to find a cure for Angelman syndrome (AS).
AS is a rare neurogenetic disorder that effects chromosome 15, resulting in intellectual and development delays and effects about 1 in 15,000 people worldwide one of which is our beautiful baby girl Winter-Rose who at 3 years old is still unable to walk and talk.
The clinical trials have promising results and we hope they will find a Cure for Angelman syndrome, not just for our Winter-Rose who is affected but for all those worldwide living with AS
Mike and his friend Aaron have challenged themselves to run the Great South Run in October, which is 10 miles long. They are taking donations and sponsorships on this justgiving link too.
Thankyou for reading and or donating 👏 and we appreciate your generosity and support.
To find out more about the charity visit https://cureangelman.org.uk/