Story
In October 2022 Sarah, our friend and valued member of the Zr Research Group, was admitted into critical care with ongoing seizures, later diagnosed as a rare case of NORSE Syndrome (New-Onset Refractory Status Epilepticus). This came without warning as Sarah was fit and healthy, and the condition meant she had to be placed in an induced coma for five weeks. Thankfully, the seizures have subsided and Sarah is now conscious again, although facing a long and challenging recovery. Given how little is known about NORSE, our research group is trying to raise awareness and funds for research into the condition, starting with this Coffee Morning. All proceeds will go to Epilepsy Research UK, which funds work on NORSE at multiple facilities across the UK including UCL, Great Ormond Street Hospital and Aston University.
Please join us for coffee and cake all morning from 9am on Tuesday 6th December, on the Mezzanine of the Royce Institute Hub Building.
If you can't attend, please do consider donating anyway!