MOLLIE'S MILES

We are cycling and running for Mollie and a cure for Rett Syndome. Mollie can't run or cycle right now; we are doing her miles for her until she can. Please read our story and help us drive home a cure for this devastating condition.

WHO: MARK JAMESON

WHAT: Three Days in the Saddle – The Tour De Norn Iron 21-23rd Aug 25.

Day 1 – Thursday 21st August (or Friday 22nd): South-Down Sampler

Route: Portadown → Newry → Kilkeel → Newcastle → Banbridge → Portadown

Distance: Just under 90 miles

Climbing: 1,400 ft

Day 2 – Friday 22nd or Saturday 23rd: Lough and the Coast

Route: Portadown → Lap the Lough (partial) → Randalstown → Portstewart

Distance: 77 miles

Climbing: 1,500 ft

Day 3 – Saturday 23rd or Sunday 24th: Homeward Bound

Route: Portstewart → Ballyronan → Portadown

Distance: 67 miles

Climbing: 900 ft

WHO: CLAIRE (MOLLIE'S MUM), NADINE, BROOKE & CATRIONA

WHAT: GREAT NORTH RUN, NEWCASTLE UPON TYNE, 13.1 MILES 7TH SEPT 25

Our beautiful Mollie was diagnosed in Dec 2021 after we noticed she wasn’t hitting milestones and had began to lose skills. So much has been stollen from her since, but there is all to fight for. The UK Rett Syndrome community is at a pivotal moment with two clinical trials of gene therapies underway.

Reverse Rett works to accelerate treatments and a cure for Rett Syndrome; it provides recruitment and support for clinical trials and raises funds for research. These funds facilitate and accelerate the drug development process in the UK.

Rett Syndrome is a neurological condition which most often strikes previously healthy little girls between their first and second birthday, leaving them with multiple disabilities and medical complexities for life.. but Change is within reach.

Every MILE is for MOLLIE