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Mollie's Miles for Reverse Rett

Claire Walls is raising money for Reverse Rett
“London Landmarks Half Marathon”

on 12 April 2026

Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Story

We have collectively cycled and ran 291.94 miles for Mollie.

Now, a group take on the iconic London Landmarks Half Marathon in April 2026 for Mollie and Reverse Rett. Please support Mollie's dad Mark and Team LLHM which includes Nadine, Ania, Dawson, Joanne, Mark J, Richard and Tim.

Mollie has been so kindly dontated tins of Wildflower Seeds which we are selling to raise money for the charity. They cost £20 per tin and will make such lovely Christmas gifts.

Our beautiful Mollie was diagnosed in Dec 2021 after we noticed she wasn’t hitting milestones and had began to lose skills. So much has been stollen from her since, but there is all to fight for. The UK Rett Syndrome community is at a pivotal moment; gene therapy trials in the US are showing exciting results and are progressing with urgency.

Reverse Rett works to accelerate treatments and a cure for Rett Syndrome; it provides recruitment and support for clinical trials and raises funds for research. These funds facilitate and accelerate the drug development process in the UK. Reverse Rett is essential to the regulatory process in the UK; the charity will demonstrate why these new and expensive treatments must be funded by NICE and made available on the NHS. When treatments arrive, Reverse Rett will be ready to ensure that every person with Rett Syndome in the UK can benefit from them.

Rett Syndrome is a neurological condition which most often strikes previously healthy little girls between their first and second birthday, leaving them with multiple disabilities and medical complexities for life.. but Change is within reach.

Every MILE is for MOLLIE

Donation summary

Total
£4,068.80
+ £896.25 Gift Aid
Online
£4,068.80
Offline
£0.00

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