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Join us for our FeBrewary fundraiser! Every penny you donate can help make sure everyone with cystic fibrosis (CF) can live a life unlimited.
As many of you know our 6 year old daughter Esme has Cystic Fibrosos. She was diagnosed at 14 days old and spent 19 days in NICU. The Trust created booklets and leaflets to help us and our family to understand our new path.
We joined the fight to push for modular medication which is the closest thing we have as a cure. The CFTrust were very much behind this fight. For us as a family it is important to support the trust to build an even brighter future for Esme and everyone else with CF.
CF rarely stops her from being the amazing little girl she is. She can down 6 and sometimes more tablets in one, which many adults would struggle to do.
So support us where you can!