Well in June 2023 we were celebrating Mum’s 80th Birthday in Jersey and this June she is very unwell and sadly being looked after by 2 carers 4 times a day.

Not only has Mum had 3 strokes in this short period of time but she has been diagnosed with PSP- Progressive Supranuclear Palsy. It is a very rare neurological condition that can effect movement, balance, speech and swallowing. There is currently no cure and symptoms are known to gradually get worse- in Mums case it has been very progressive as she can no longer walk or even say what she wants to say and trying to get her to eat has become a nightmare. Wayne and I believe in looking at the symptoms she has actually had the condition for a long time but it’s difficult to diagnose as the symptoms cross over with other diseases as I’ve learnt it is actually a form of Parkinsonism.

Me being me I don’t want others to suffer like poor Mum is so want to raise some money for the only PSP charity in the UK. Now a lot of you know I’ve already done a skydive and more recently a wing walk so what next? I have decided to do a zip line, but not a half hearted one - the fastest one in the world and the longest one in Europe!!!- Velocity. For me this is the scariest challenge yet, but it’s a good excuse to go to picturesque Snowdonia (not that I think I’ll see much of the views as the zip line travels at a speed of 100mph plus!!) and most importantly an amazing way to hopefully raise funds to find a cure for this cruel, debilitating and extremely frustrating neurological condition. Thank you for reading and I really appreciate your support xxx

PSPA is the only UK charity dedicated to improving the lives of people living with Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD). We provide information and support for people affected by PSP & CBD whilst funding research into the causes, treatment, and eventually a cure. Together we can stop PSP & CBD in their tracks.