Most of you if not all of you will know our son Daragh.

Daragh has PKU and has been lucky enough to gain access to a life changing drug which has made his life somewhat easier. But for many in the PKU community the current treatment is not suitable. We need continued support to help the rollout of new treatments and help the research into new treatments for all in the PKU community.

Join us on Sunday the 15th of September 2024 as we lace up our running shoes and hit the pavement for the 'NSPKU Race to £10K' marathon. Our goal is to raise £10,000 for the NSPKU, an organization dedicated to supporting individuals and families affected by PKU through education, research, community, and advocacy.

The Wife along with some family and friends and myself will take part in the rock the lough event to run either 5k or 10k or a half marathon for some in the quest to raise funds.

Your donation will enable the NSPKU to continue their vital work in empowering the PKU community. Together, we can make a difference!